Mental Health and Sickle Cell Disease: What Policy Leaves Unseen

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Behind every Sickle Cell Disease (SCD) diagnosis lies a narrative of anxiety, stress, isolation, grief, pain, and resilience. Our work with women and young women from marginalised communities illustrates how mental health remains the most overlooked aspect of SCD. This dimension is often unrecognised by families, overlooked in policy, and inadequately addressed by the health system. This blog attempts to bring that experience to the centre. Continue reading

Workshop on Integrating Disability and Psychosocial Support within Sickle Cell Disease Care

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Sama Resource Group for Women and Health is organising a one-day state-level workshop in Chhattisgarh on “Integrating Disability and Psychosocial Support within Sickle Cell Disease Care” for people living with sickle cell disease and their caregivers. This will be held… Continue reading

Roundtable on Psychosocial Health, Disability Justice and SCD: Some photographs

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Building on earlier conversations, research, and collective reflections on Sickle Cell Disease (SCD), Sama Resource Group for Women and Health convened a follow-up roundtable meeting in New Delhi on 4 July 2025.The roundtable sought to deepen engagement with psychosocial health and disability justice as core concerns in responses to SCD. Here are some photographs of the roundtable. Continue reading

Amplifying Psychosocial Health and Disability Justice in the Realm of SCD: A follow-up roundtable

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On 4 July 2025, Sama Resource Group for Women and Health hosted a roundtable meeting in New Delhi as follow-up to its work on SCD. The aim of this roundtable was to emphasise the importance of centring psychosocial health and disability justice as core concerns in responses to SCD. Continue reading